webinar register page

Webinar banner
Amryt Virtual Analyst & Investor Event

02:12:00

Nov 3, 2020 08:11 AM

* Required information
Loading

By registering, I agree to the Privacy Statement and Terms of Service.

Register

Speakers

Prof Jemima Mellerio, M.D.
@St John’s Institute of Dermatology
Prof Jemima Mellerio trained in dermatology in South London at St John’s Institute of Dermatology and King’s College Hospital. Undertaking her MD at St John’s Institute on Genotype-Phenotype Correlations in EB sparked an interest in genetic skin fragility disorders that has endured. She has been a consultant dermatologist since 2003 and is based at St John’s Institute of Dermatology, Guy’s and St Thomas’ Hospital, London where she is Chief of Dermatology and leads the Adult EB Service which provides clinical care for around 500 individuals with EB.
Brett Kopelan
@debra of America & DEBRA International
Brett Kopelan was initiated into the world of rare diseases ten years ago when his daughter was born with a severe form of Recessive Dystrophic Epidermolysis Bullosa (“RDEB”). Shortly after her birth, Brett was elected to the board of directors of the Dystrophic Epidermolysis Bullosa Research Association of America (debra of America).
Jimmy Fearon
@DEBRA Ireland and DEBRA International
Jimmy Fearon is CEO of DEBRA Ireland and Vice President of DEBRA International. Jimmy has worked for ten years as CEO of DEBRA Ireland. From an organisational perspective, his focus is simply - what does really good look like? How do we get there? In DEBRA's case good looks like closing the gap between what the patients need and what they receive from the state. The gap is wide. To this end DEBRA has established the EB Community Care Programme to create a high standard of support in the home and community.